Where your money goes
CGD Research Trust - Registered Charity Number 1003425
Imagine your child has a rare disorder you have never heard of and no-one else has either! The CGD Research Trust is the world’s leading specialist organisation working on chronic granulomatous disorder, a rare immune deficiency. Imagine the relief on finding a charity that can give support and award-winning information, put you in touch with other families and who funds a specialist nurse to advise you. We strive to create a better life for those living with CGD through support services for our families and through funding vital research to find improved treatments and a cure for those affected. Over the last 10 years more than £3.6 million has been invested into 39 research projects.
Tel 01725 517 977
Rainbow Trust Children’s Charity - Registered Charity Number 1070532
When a child is diagnosed with a life threatening or terminal illness Rainbow Trust provides a helping hand, a listening ear and a shoulder to cry on when things get tough. Our families tell us that we give them the strength to carry on. This practical and emotional support is provided through respite breaks at our two houses and care in the families’ own homes. Rainbow helps one in ten families who have a child with a life threatening or terminal illness. For every child we help there are nine that don’t receive our special care. Only lack of funding holds Rainbow Trust back.
Tel 01372 363438
SPARKS - Registered Charity Number 1003825SPARKS is unique. It isn’t a single issue charity. SPARKS is the only charity to fund cutting edge research across the whole spectrum of paediatric medicine. Working with doctors and scientists at leading universities and teaching hospitals across the UK, SPARKS research work encompasses childhood cancers, childhood arthritis, meningitis, spina bifida, cystic fibrosis, muscular dystrophy, the risks associated with premature birth and many other conditions affecting babies and children in the early years of life. SPARKS has already committed £15.5 million to fund 185 research projects with the aim of giving more children the best of all starts in life ... a healthy one.
Tel 020 7799 2111
Whizz-Kidz - Registered Charity Number 802872
Whizz-Kidz changes disabled children’s lives – literally overnight. By providing them with customised mobility equipment, training and advice, we actually give them something much more important. We give them independence to live a life of freedom at home, at school and at play: the independence to be themselves.
We also work to raise awareness of mobility issues through national campaigning. The service we provide is not available on the NHS, yet it has an enormous impact on the lives of disabled children and their families throughout the UK.
Whizz-Kidz has changed the lives of over 6,000 disabled children since 1990, but there are still over 70,000 children in the UK who need our support right now.
Tel 020 7233 6600
The XLP Research Trust - Registered Charity Number 1111075
To have one child with a life taking condition is bad enough, but to have multiple brothers and cousins with such a condition is absolutely devastating.
X-Linked Lymphoproliferative Syndrome (XLP) is a rare, always fatal inherited disease that only affects boys. 70% of boys with XLP die by the age of 10 years without treatment. Today the only possible cure is a bone marrow transplant – in effect replacing the faulty immune system. But only 30% of XLP sufferers can find a suitable bone marrow donor, so for the charity one of its key roles is to promote and fund medical research into the cause, management and potential cure for the disease. The charity also acts as a support group for XLP affected families across the world.
Tel 01794 521077